Nutrition and Neurodisability / Edition 1

by Peter Sullivan, Guro Anderson, Morag Andrew

Overview

This handbook provides easily accessible information on the aetiology, assessment and management of nutritional disorders in children with neurodisability. Succinct review of current evidence and guidelines is used to inform best practice. Early chapters outline the normal anatomy and physiology of feeding before considering the assessment and management of disordered feeding, and impact on nutritional status. Subsequent chapters discuss nutritional assessment and management supported by clear illustration of anthropometry techniques. Further consideration of the consequences of under and over nutrition, and impact on bone health is included. Dedicated chapters on associated gastrointestinal problems, management of drooling and dental care consider related comorbidities commonly experienced by children with neurodisability. A dedicated chapter on the use of tube feeding considers specific nutritional requirements and psychological aspects of intervention. Clinical vignettes are used to illustrate key learning points throughout.

Product Details

ISBN-13:	9781911612254
Publisher:	Wiley
Publication date:	03/24/2020
Series:	Practical Guides from Mac Keith Press Series
Pages:	224
Product dimensions:	6.70(w) x 9.40(h) x 0.40(d)

About the Author

Peter Sullivan trained in Universities in Manchester, Cambridge and London and has worked in India, The Gambia and Hong Kong. He was the first David Baum Fellow of the Royal College of Paediatrics and Child Health and also past-President of the Commonwealth Association of Paediatric Gastroenterology and Nutrition. He is currently Associate Dean of the Medical Sciences Division of Oxford University with responsibility for postgraduate clinical medical training. His research interests focus on the gastrointestinal and feeding problems of children with neurodisability in which subject he is actively engaged in research and on which he has produced numerous scientific papers and textbooks.

Guro Anderson established the Cerebral Palsy Register of Norway, which she currently leads, and the Nutritional team at the Habilitation Center at Vestfold Hospital Trust, where she is a senior consultant. Guro was also a Task Coordinator for Task 5.3 Growth and Nutrition Variations in general outcomes of health care for children with cerebral palsy across Europe: growth and nutrition; a study by the Surveillance of Cerebral Palsy in Europe.

Morag Andrew trained in Paediatric Neurodisability in London (Great Ormond Street Hospital for Children) and Oxford, where she developed her interests in neurological feeding disorders and nutrition. She was awarded a DPhil (University of Oxford) for her work on nutritional intervention following perinatal brain injury and has published several original research papers from this work. She was one of the first British Academy of Childhood Disability-Castang fellows between 2017-2019. Her research interests include nutrition in neurodisability as well as neurodisability interventions more broadly.

Table of Contents

Author Appointments vii

Foreword ix

Preface xi

1 The Normal Development of Oral Motor Function: Anatomy and Physiology Morag J Andrew 1

2 'When Things Go Wrong': Causes and Assessment of Oral Sensorimotor Dysfunction Diane Sellers 7

3 Oral Health and Sialorrhea Amy Hughes Isabelle Chase Laurie Glader 29

4 Gastrointestinal Problems in Children with Neurodisability: Causes, Symptoms and Management Ilse Broekaert 47

5 Consequences of Nutritional Impairment Jessie M Hulst 69

6 Assessment of Nutritional State: Growth, Anthropometry and Body Composition Jane Hardy Hayley Kuter 87

7 Assessment of Nutritional State: Dietetic, Energy and Macronutrients Jacqueline L Walker Kristie L Bell 109

8 Assessment of Nutritional State: Micronutrient Deficiencies and Bone Health Heidi H Kecskemethy Steven J Bachrach 131

9 Feeding and Nutritional Management Strategies Kristie L Bell Katherine A Benfer Kelly A Weir 149

10 Enteral Tube Feeding: Practical and Ethical Considerations Peter B Sullivan 169

Conclusion Guro L Andersen 183

Index 187

Editorial Reviews

Reviewer: Deena Hassaballa, DO (Shirley Ryan AbilityLab)
Description: This book covers the anatomy of swallowing, disorders of swallowing, assessments, and treatments, along with further nutritional issues that arise in children with neurodisability disorders. What makes this book unique is this deeper dive into the nutritional issues that come up in this unique patient population.
Purpose: The purpose is to guide the provide a guide to what to assess and look for when it comes to the nutritional status of a child with a neurological disability. It is quite thorough as it starts out with the anatomy and swallowing process in full before going into what issues can arise. The objectives are extremely worthy in this unique patient population, which is likely overlooked. The book is necessary to prompt clinicians to look beyond deficits in their patients to what other important issues they need to address to help prevent a decline or a later issue. The book meets its objectives with a stepwise account of the normal nutritional and swallowing status before a further discussion of what issues may arise. The book does a great job of incorporating case studies into most of the chapters to help bring the information together for clinicians.
Audience: The audience includes physicians, nurse practitioners, physician assistants, fellows, residents, and speech-language pathologists. It targets practitioners in neurology, physiatry, and speech language pathology as well as pediatrics and the pediatric specialties.
Features: This book covers the normal development of oral motor function, the issues that can arise, and how to assess and treat. One of the best aspects of the book is the chapter on normal development of oral motor function. It delves into the anatomy and physiology as well as how to assess for abnormalities. Appropriate figures and tables throughout the chapters, as well as cases, help clinicians apply the information. The gastrointestinal chapter is particularly well done. The material is organized well, particularly in the review of body systems. For example, the discussion of chronic constipation and other diagnoses is divided into an introduction, causes, symptoms, management, and treatment. The anatomy chapter should have had more visual aids when discussing the cranial nerves as well as the imaging of the VFS and FEES.
Assessment: This is a high-quality book that is useful to the intended audience, and it is a useful/simple read for clinicians to help them treat this unique patient population.

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